Posts in category Family Stories

Isaac Employs his Own Staff

For our family, the greatest benefit of self managing our son Isaac’s NDIS plan has been the ability to recruit and manage the right staff. Being in charge of our own staff has led to great leaps in achieving Isaac’s goals for a good life. In the past, planning and building a good life for him has been made frustratingly difficult by not having the right supports. He has such great potential for work, being a friend, being a housemate, being a community volunteer and more but to make that happen we needed support staff with a specific skill set, values, interests, personality and commitment.

Before the NDIS we were forced to use an agency to provide support workers for Isaac. Their support workers were often students wanting to make a bit of money to survive student life. Just as Isaac started to get to know them and have some predictability in his life their timetables changed and they would become unavailable. When new staff began working with Isaac we would be lucky to get a single shift handover before they were stripping Isaac off to get into the shower. They would also invariably be completely inappropriate – not the right skill set, too old, no shared interests and so on. Isaac would be subjected to stripping naked in front of people he couldn’t relate to or communicate with, with whom he had nothing in common and didn’t like who disappeared at the end of semester. Sending a 54 year old woman to support Isaac to hang out at the local pub to listen to a live band was the straw that broke the camel’s back. It was an unacceptable life for us all.

We looked forward to the arrival of the NDIS. It would mean that we could choose the agency we wanted to use. When the NDIS did arrive we looked around and sadly found it was the same old crowd of agencies with the same old problems. Isaac deserved better.
We had been building a circle of support around Isaac since 2007 and with the coming of the NDIS we felt it was time to get serious and turn it into a microboard – an incorporated association. Becoming incorporated meant that Isaac would have an organisation around him that only focussed on him and would operate even without myself and his step dad being around. It also meant that we could set the microboard up as an employer and hire the right staff for Isaac. To do this we decided to self manage Isaac’s NDIS funding

We were worried about how much work that would be. We had no experience in being an employer so we were very nervous about the responsibilities that would involve. But the thought of eliminating the frustrations of working with hopelessly mismatched support workers and giving Isaac back his dignity and some predictability in his life helped us to be brave and give it a go. At least this work would be positive work where we were actually empowered to make Isaac’s life better.

To find out what we needed to do to become a responsible employer members of the microboard researched the Fair Work Australia website, asked some family and friends who owned businesses that employed staff for guidance, did some free training courses through Canberra Business Point and hired an accountant who we could pay with the financial line item in Isaac’s NDIS plan. We learned how to:

  • Obtain an Australian Business Number – ABN
  • Apply for a Tax File Number
  • Register for PAYG withholding & BAS Statements
  • Obtain insurances – Public liability & workers compensation insurance
  • Develop a Policy Manual
  • Hire an accountant
  • Understand which Modern Award to use to pay our staff under and ensure we were familiar with other working conditions under the award.
  • Do checks on Working With Vulnerable People Cards, Vehicle Insurance and Drivers Licence.
  • Write Employee Contracts

It was a lot of work but we didn’t have to do it on our own so it didn’t overwhelm us. It was also positive and exciting work. The largest task was to write a policy manual but we didn’t have to write it from scratch. We took policy manuals that we found through our online research and adapted them. We did it one chunk at a time and with the help of microboard members.

We also learned that while being an employer meant a lot of responsibility and risk, we would be well supported by Fair Work Australia and the Australian Taxation Office. We found them very helpful. They were also quite forgiving if you made mistakes but owned up to them and asked for help on how to do things right.

When it was time to hire the staff our microboard was coached by Microboards Australia in a great process for recruiting good support workers. We learned how to create a job ad that would attract the right kinds of people to the role, how to shortlist, how to interview and onboard new staff. Most importantly we learned about how to include Isaac in the process of hiring his support team. Microboard members assisted with distributing job advert posters, running a group interview and doing individual interviews. We attracted some really great people.

Isaac participates in the group interview

Isaac participates in the group interview

Isaac joins in on the discussion about the candidates

Isaac joins in on the discussion about the candidates

Isaac now has a team of hard working, committed and skilled staff that he adores. They work in truly person centred ways. Everything they do is about Isaac. We have a team of three support workers, a business manager, a decision support and communication mentor, an indigenous cultural mentor, an independent living mentor and a lifestyle coordinator.

The lifestyle coordinator supports our family, the support team and the microboard with administrative tasks like writing staff contracts and performance agreements, coordinating staff meetings and microboard meetings and finding out information we need like finding a swimming coach.

The decision support and communication mentor supports Isaac and his other support staff to use his alternative communication device and to support Isaac to become more involved in decision making in his life. She creates resources like talking mats and aided language displays to help Isaac to learn to make decisions. She is also supporting other support workers to use Isaac’s alternative communication tool – PODD – so they can model it with Isaac.

The cultural mentor is teaching Isaac about indigenous culture. He takes Isaac out on bush walks, tells him indigenous stories, explains indigenous language and sings indigenous songs. Isaac loves every minute of it.

The independent living mentor is working with Isaac and his other supports to teach him to learn how to do things for himself such as getting dressed and doing chores around the house.

The business manager’s role is to understand Isaac’s needs at work and to make sure he can be as successful as possible. She works with new business clients of Isaac Delivers to make sure the work and the environment suits Isaac. She then prepares the support workers on how to support Isaac on his new delivery route.

All staff have regular on the job training where we video support staff working with Isaac and review it as a team to look at areas where we can develop better practice and more consistency. We also go away on a retreat once a year along with the Microboard Members where we invite experts to provide training on topics of interest such as communication and managing challenging behaviours.

Because we self manage we can still pay our workers well, cover insurance, leave and superannuation costs and still have some money to spare to put into training. We are not paying for the expensive office space, electricity and IT systems of support agencies.
Our accountant does our payroll, tracks our NDIS budget spending, pays invoices from any service providers we use and helps us to figure out how we can adjust our budget if something arises that we hadn’t planned for. Our accountant gives me a list of things I have to claim on the NDIS portal once a fortnight which only takes me fifteen minutes.

Isaac’s life goals have been so much easier to work on now that we have our own staff. He is working in his own delivery business called Isaac Delivers. The staff have worked together to figure out the best way for Isaac to do as much of the work on his own as possible. They have worked out how he carries the bag, how he hands the bag over, where he stores the bag in the car and how he can use his communication device to interact with his customers. They have also looked at understanding, preventing and managing some challenging behaviours like undoing his seatbelt.  Being in charge of our own staff has made all the difference.

Eli’s Microboard Story

By Jaquie Mills (Eli’s mother)

Eli’s microboard is called Blazing Condor Soul Explosions Inc (BSCE).  Eli is a bit of a character as you can see from his Microboard name.  His microboard was the first Vela Microboard in Australia.  Members of BCSE Inc include family, friends and former support workers.

When Eli was in high school I really started to worry about how I would be able to continue to support Eli to live an ordinary life in the community.  In 2006, myself and my partner Darryl flew to Baltimore in the USA to visit another family who had a son with Angelman syndrome and a microboard which had helped them to set up a good life for him.  On our return, I set up a circle of friends around Eli and then worked in partnership with the Disability Services Commission and Perth Home Care Services (now Avivo) to develop the Microboard model with families in Western Australia.

Eli’s microboard members include Eli in their own lives.  Microboard members Coral and her husband Jason and brother Joe are keen footy fans and they wondered if Eli would like to come along with them to the football each week.  Eli had never been to a football match and it turned out that he loved footy!  Eli doesn’t speak so when the other team scores he does the sign for “dickheads”!  He has now been going for many years and is well known at the Bayswater Football Club.

As for many people with disability, accessing medical care safely can be tricky for Eli. His microboard members at times attend medical appointments and treatment with him. It makes a difference when the person has a group of people around them who care about their wellbeing.  One of the microboard members did an over night shift with Eli when he was in hospital.

Eli communicates using a PODD book.  Coral designed these communication boards for Eli’s PODD and prints and laminates them as well as his schedule and other resources.  Microboard member Sophia programmed PODD for Compass on his IPad.  His other microboard members have learned to use the PODD and help model how to use it with Eli.

Eli’s microboard decided they wanted to do a trip with Eli to the Gold Coast in Queensland.  We needed a large vehicle to accommodate Eli’s wheelchair and other equipment for the trip. Hiring this vehicle was going to be costly so we decided to do some fund raising.  BCSE developed a relationship with Eli’s local Coles store through BCSE member Jason who works there.  They provided us with some buns and sausages and the microboard ran a couple of sausage sizzles to help pay for the vehicle hire.

When we arrived at the Gold Coast the microboard members supported Eli to ride a roller coaster safely.  We knew it could be potentially dangerous for Eli as he has a number of medical issues.  So the microboard members tested out all the rides and rated them from safest to most risky.  They also problem solved how to keep him safe on rides – sitting him in the middle so his arms didn’t move outside the carriage and things like that.  While he didn’t go on any of the highly risky rides he had a fantastic time on some of the smaller ones.

Vice chair of BCSE Liam is a pool guy, which comes in handy now Eli has a spa at his house.  Liam checks the chemicals in the spa every fortnight. He also checks in on how the house is going and shares any concerns with us and the microboard.

Luke is a member of our local State Emergency Service. He makes sure we have the right fire equipment and evacuation procedures.  He enjoys writing safety policies and procedures.

Luke and his SES buddies that help us with health and safety

Luke and his SES buddies that help us with health and safety

 

Eli and Coral watching the game at the Bayswater Football Club

Eli and Coral watching the game at the Bayswater Football Club

 

Eli's microboard members support him in hospital

Eli’s microboard members support him in hospital

 

 

Microboard Meeting

Microboard Meeting

Jason and his son Eddie practicing using Eli's PODD book

Jason and his son Eddie practicing using Eli’s PODD book

 

Eli and his microboard members raise money to hire an accessible vehicle for their holiday together

Eli and his microboard members raise money to hire an accessible vehicle for their holiday together

 

Eli rides the roller coaster with his microboard members

Eli rides the roller coaster with his microboard members keeping him safe

Liam the pool guy and microboard member who checks in with Eli at home

Interview with Anne McCormack about her Son Seamus’ microboard

Anne McCormack and her husband Fergal set up a microboard for their son Seamus in 2003.  They live in Northern Ireland and Sheree went to visit them to learn from their experiences.

Recruitment coaching helped us to recruit an awesome team

Our family was tired of using support worker service agencies for our son Isaac as the people they kept sending us were totally inappropriate.  They shared no common interests with Isaac, were the wrong age group or too inexperienced.  So we decided to recruit our own team and paid for a series of 6 mentoring sessions with Microboards Australia to help us through the process. Read More »